I can’t get changed.

So I got very wet from the rain walking the dogs this morning, and as I am unable to change I’ve spent the day very damp. Now that I’m on my way home, I’m starting to dry off a little.

In case this wasn’t clear, once I’m dressed in the morning I generally cannot get changed until the evening. There have been occasions where I have been able to get changed throughout the day, but as I have gotten older and changing has become more difficult these instances have become few and far between.

This is somewhat of a personal choice I suppose. I could have another call in the middle of the day, but this would limit what I would be able to do with my day, and I don’t want to do that. Either way I wouldn’t just be able to call carers back when I needed it, so hanging around for them in the day just doesn’t make sense to me.

So my freedom comes at the price of my comfort, and on most days like today, once I’m wet I stay wet. But hey, at least it isn’t pee. That my friends is what we call an incontinence joke.

But now I’m cold, like to the bone cold if you know that feeling. I’m very glad my day is nearly over.

All this is to say, as I loose the energy needed to write this post. If you see someone with spilt food on there clothes, which yes I also did today. Or wet clothes. Or just something that can’t easily be fixed within five seconds, just stay quiet about it. They may be aware and may not be able to fix the problem themselves. You hilighting it only brings more shame. Additionally wait another 10 if its raining a lot when its time to walk the dogs.

Today was odd.

In some ways it was fun. I got to watch the new Doctor Who which was so great.

But I also feel a little guilty for today. I was supposed to go and see someone who said I didn’t have to go because it was really hot here. Even though they are the one who said it was okay I still feel guilty for not going. I just really didn’t want to go out today, and it wasn’t completely about the heat though that was part of it.

Sometimes I find it very difficult to leave the house, emotionally. I just really do not want to, and get tired of forcing myself to.

I feel like the house won today, and the relief I felt about not having to go out, also came with guilt. I feel like I should have wanted to go and see them, but I just didn’t.

Anyway, if you saw them, I hope you enjoyed the Nothern Lights, I was asleep. 😂

Snow Day

I’m someone that likes to spend a lot of time in my house, but it’s different when you don’t have a choice in that.

If you ever look at that too closely at my situation, you might come to the conclusion that that is because the world outside is difficult for me. There is a lot of inaccessibility that I face on a daily basis. Far more than I will ever have the time or energy to process let alone write about.

There is just some stuff you just have to ignore to get on with your life. But it’s impossible to ignore everything, and I don’t think I should have to just make everybody else feel better. This is why I started to write about and share my experiences.

Today is one of those days, where I can’t ignore my experiences of inaccessibility. The inaccessibility I’m facing today, and my lack of choice in this, is obvious today. As the picture below shows, today is a snow day.

Image Caption: The ramp outside my home covered in a thin layer of snow.

While I have cropped this photo to protect my safety and not give too much away about where I live. The original photo also showed how my garden and the pavement and road outside my home were also covered in this amount of snow.

This may not seem like a lot of snow, and I completely understand that depending on where you are in the world it actually isn’t. But when you use a wheelchair it doesn’t take a lot of snow to make going outside incredibly dangerous. So I’m going to be stuck in the house.

Now I had no plans to go outside today, I’m actually waiting for something to be delivered. The only thing I really had to do was walk the dogs, but they’ll be fine for one day.

But now I can’t leave the house, and this isn’t just a choice, things feel a lot different.

Choice matters. And just because someone is doing something that you wish you could do, like staying at home, doesn’t mean they’re doing it by choice.

Today the world is inaccessible to me because of the weather. And that means there’s nothing I can do about it, but wait for it to pass. Maybe tomorrow will be different, but we’ll just have to see.

I hope you get to enjoy the weather wherever you are, and have the best day you can, whatever that looks like for you.

It’s cold.

The temperature has been weird lately, welcome to global warming I suppose.

It’s the cold that really gets me personally causes me a lot more pain. And honestly right now I just don’t want to go out.

I’m sat under three blankets, because that’s all I can reach on my own. This includes my attic blanket and I am still cold. The thought of going out today, just makes me angry.

I don’t have to go out, but I’m supposed to. And I honestly if I want to anymore, it really just doesn’t feel like a free choice. The thought of getting out from under these blankets honestly just seems like a bad idea.

I guess you could say that the temperature has made the world inaccessible to me for the time being. Or at least it’s made it feel that way.

The weathers changed.

For some reason, even though the weather changes around this time every year, I always seem to forget just how much it is different.

Today was the first day that I had to cancel plans because of the weather. It was just too icy for me to go out, and the cold wasn’t pleasant either.

On a sidenote if anyone finds them self reading, this has any ideas for portable heaters that can be used outside and work from batteries or USB power can you leave a comment I’m struggling to find something that works. I’ve tried various electric blankets that were via USB and they have all been rubbish. The cold is far from my friend.

Pretty much every year this happens where the weather reaches a point where it is dangerous for me to go out.

Now not being able to leave the house sounds like a great day doesn’t it? But it’s one of those things that is very different when you have no say in the matter. I’m warm which is good, and given the current state of the world I am very thankful for. However bad weather is probably one of the times where I feel the most disabled, where the world is the least inaccessible to me.

And the most frustrating thing, other than the fact it is just the weather and that means there’s absolutely nothing you can do about it. Is that it’s probably not the weather you think it is that is the most inaccessible to me. Thick snow is not actually much of a problem for me, it’s the thin snow and more like ice, that makes it difficult for me to go out.

One of my other pet hates when the weather is like this is the grit that used to make the ground less icy so that people don’t fall. Now it does actually help me have a little bit more grip on my wheelchair, so it means at least for me it does its job. However, because my wheels aren’t shoes that I can simply take off, every year I track the grit that I will through into my house. And I guess it’s just one of those annoying things about being a wheelchair so that you can’t change.

Depending on how the weather changes, it is likely I may have to cancel more of my upcoming plans, and to be honest with you, I’m not looking forward to that. It always makes me feel responsible for letting people down when I can’t do things, even when I logically know such as in situations like this is not my fault.

I guess I’ll just have to see what happens with it all, and as always I’ll do my best.

I can’t tell you what the weathers like

What’s your favorite month of the year? Why?

It’s hard to put it down to a month. Time is kind of weird to me.

I can tell you things I’ve done, places I’ve been, but when I’ve been there is hard to pinpoint. But one thing I can tell you is what the weather was like.

In some places in the world being able to remember what the weather was like would tell you what time of year it was. But it England, it’s more complicated than that.

The weather changes so quick, but it can be hard to pinpoint a to a certain weather. But perhaps unsurprisingly I can tell you that my favourite time of year at this times.

I wish it was the cold colder times. But like much of my life I love the idea of a lot of things I don’t actually like. I love the idea of winter and snow, but my disability, my reality, doesn’t

I’m sorry because I know that this post doesn’t answer the question.

This one’s slightly unhinged and might not make sense. Sorry.

I’m sorry. It’s been a long day.

If you read my previous post you’ll know that I had plans for what today’s post was going to be. But I’m here to tell you those plans have now been forgotten.

I’m still up. I’m still out. My brother had a concert to go to, and the tickets were booked before he had a mobility aid that he now uses, and so the tickets aren’t accessible. He can manage without it with help, so I was left watching it tonight. Which is obviously fine. It’s just a very long day.

It meant that I have had to cancel my care in order to be out, and I have now been up for over 12 hours. Additionally I got wet in the rain this morning, and there’s no real way for me to get changed if I get wet in the day. That means I’ve been stuck slightly wet for most of the day, which isn’t great.

So I said it’s just been a long day.

Never.

How often do you walk or run?

Sometimes questions are phrased poorly when you’re disabled. I am a full time wheelchair user, I have never walked and will never walk a day in my life.

Therefore the only way I can answer this question is to look at it from different points of view and that changes the answer I will give.

If you’re asking how often I exercise, which could be what this question means. Then many of the tasks that I have to do on a daily basis, rolling, lifting my bag etc. can be considered exercise. Intentionally exercise I do rarely and if ever, I get tired enough just living.

Another way you could answer this question is by looking at how often I get out of house. And honestly my girls are a massive motivator for that. They are walked daily when the weather permits. When they are not with me, I don’t usually like to go out without having somewhere to go, but I might take a longer journey home if the weather is nice.

I hope this answers the question, but I guess that’s up to whoever is redding this to decide. 2

Winter.

What is your favorite season of year? Why?

And I know it might seem weird to comment on the Inaccessibility of the weather, but it is true.

I’m a Christmas girl at heart. Don’t get me wrong I’m not very religious. I just love the pretty lights, to be honest. And snow is really fun to look at, though it tends to be Inaccessible. Snow is pretty but not accessible. I have been stuck in the house multiple times because of snow.

So winter is my favourite season, because you know I love a good hot chocolate. My most accessible season has to be summer. No snow or leaves is blocking the path, no puddles hiding the reality of the pavement.

This is often the case more than you might be realise, at least for me as a disabled person. That just because something is my favourite, doesn’t been it is going to be the most accessible.

And I know, changing a season isn’t something that’s easy to do, or in this case right because there should be snow in winter even if its Inaccessible. But maybe other things can be made accessible so other things that I enjoy can also line up with them being accessible to me. Like swings. Why can’t they be accessible to wheelchair users, or theme parks or beaches? You get the point, anyway.

What about you, what’s your favourite season and why? Also what’s that season like wherever you are?