A good day can disrupt plans

In my post yesterday, I wrote about discussing an event on inaccessibility that I experienced on Monday, and while I still want to write about that, I’m sure you can guess from this post’s title that this is not what this post will be about. For this, I must again apologise.

I want nothing more than to explore just how inaccessible Monday was for me, and today for that matter, as I had to return to the same area and unfortunately experienced the same problem. But I find myself after a wonderfully busy day, lacking the energy and to be frank the motivation to get into such an incident with the attention it deserves.

I will do my best to get to it eventually.

Today I had a wonderful day with my boyfriend, it’s funny to say I have a boyfriend but that’s a different story (or post) for a different day. But either way, we spent a couple of really good hours together, and while I would do it again in a heartbeat, it has left me exhausted. For once though it is that nice kind of exhaustion that comes from a good day, and not what I lovingly refer to as ‘CP Tired’, which is the exhaustion that comes from my condition.

As anyone with a chronic illness or disability who reads this will know, the good days can often cost us. Being tired is a price I am willing to pay for a good day.

Trust something well worth writing about to happen when I am too physically busy to write about it. My mum would call this, ‘sods law’
Anyway, I will do my best to get to this post tomorrow. That said I have another busy day, so I make no promises. I can only hope that you will all find this post worth the read when I finally get it out there.
I hope you all get a restful night’s sleep, and remember not to blame yourself if you find your energy levels lacking and thus preventing you from doing something you want to do.

If your condition is in any way a deciding factor for the decisions that you make, which it often is, please remember you are not responsible for this. It is your condition that has made the life you want inaccessible to you. This is not a choice you have made, do not take responsibility for something you had no control over.

5 everyday things that bring me happinesses (and an update)

What are 5 everyday things that bring you happiness?

1. My dogs. My little girls mean the world to me. Caring for them can be a lot of work and would likely be something I would struggle to do alone. But they are worth it and I have help.

Image Description: A picture of both my dogs. A yellow Labrador and a Cavilier King Charles.

2. My electric blanket. I use this daily. Even on the hottest day of the year. It’s also one of my main sources of pain control. However this can be Innaccesssible for me to do independently due to the fact that I can struggle to put the blanket on.

Image Description: A stock photo of a white blanket.

3. A good cup of coffee β˜•. Does anything beat a good cup of coffee? I don’t think so. And even though I often struggle to find the energy to make it myself. I really appreciate having a good cup made for me.

Image Description: A stock photo of a cup of coffee on a wooden tray with a small biscuit and a long silver spoon.

4. A good nap. Sometimes the world gets to much. Life is hard for all of us. And some days it’s just to hard. You can’t be a good nap to get away from this. You could perhaps say napping was inacessible to me, before I figured out a way to somewhat comfortably do so in my chair.

Image Description: A stock photo of someone on a grey sofa under a blue blanket.

5. A good hug. I do love a good hug from someone I love. Someone that cars a great deal for me. And someone I gave a close relationship with.

Image Description: A stock photo of two young children on a green chair wearing white and yellow clothes with green sandles. The children are hugging.

Update on my life and the future of the blog, not necessary to read if you don’t want to.

It has been a while since I posted I know please forgive me. The fatigue and depression like feelings I’ve been having lately have made everything but the bare minimum of existing lately seem impossible. I have a deadline coming up in the next two weeks so won’t be posting much until after then. But I then hope to get back into writing more regularly on this blog again and hopefully daily.

Thank you for your patience. And as ever leave me any requests for pictures, questions or topics you want me to talk about or just general feedback as always welcome.

Tired.

What is one word that describes you?

Right now I’m just tired. Tired physically and mentally. My sleep pattern is non existence and yet the world still goes on. I’m supposed to make this about innaccessiblity, and I guess the innaccessiblity of the world bothers me more when I’m tired. That was a reach I know, sorry.