I lost something

I have very limited control in my life, therefore the control I have is very important to me.

This translates into a few different areas into my life.

One area is the files on my computer. This makes sense when you realise that I can put everything where I want and in whatever way I want. There is no way my files will never not be accessible to me.

I think this is part of the reason I got so upset when I lost a file the other day, which I still haven’t found. It’s because I feel like I’ve lost control in an area where I had control, and that’s scary.

The file isn’t even that important, and I’m working on getting a replacement for it.

So this one’s to say don’t judge what other people find important because you don’t know why it is that they find it important.

I hold to my word.

Sometimes it seems like I’m the only person that actually does what I say I will do. I think it’s because I am so reliant on others peoples word, that I make sure that I am honest with mine. I don’t want to be let down the way I have been let down.

I have been let down a lot, by being told people will be here at a certain time, or being told places are accessible to me, when there not. And yet I have no choice but to take these people at the word, as I need them to help me access the world around me. Or at least to tell me if I won’t be able to access it. If I can’t, I would just prefer honesty.

I guess this is a quick one to say, that while honesty is of course important for everyone, it can be more important if your disabled, if you need help. You need the people around you that are supposed to be helping you to be honest with you, or it can ruin your life.

The carers were late.

I’m aware my carers can be late in the evening due to previous calls. But when they don’t let me know it delays when I eat my tea, as I explain in the above clip.

Occasionally, I then end up eating my food too quickly for me, as I did tonight. Even though it took me 30mins to eat a small meal, I feel as if I ate it to quickly and I am now dealing with the side effects of this.

Almost everything I do is reliant on other people. All I’m asking for is them to understand and respect that. And at least tell me when they’re going to be late.

I’ve heard them like to other clients while in my house. They seem not to be able to understand that honestly is better than lying and it’s honestly frustrating.

This evening they used the excuse that I wouldn’t answer the phone, while this is occasionally true, that’s not an excuse for them not ringing or contacting me in any way.

They want understanding when they don’t really want to give me any.

My life is inaccessibile to me when people lie to me, and don’t tell me what is going on. What’s a job to them is literally my life.