Christmas evening

I want to say that I spent it alone, but that’s not true because I spent it with my girls, enjoying a curry.

And while this was my choice it doesn’t always feel like it was my choice to make, more like a choice that happened to me. Not that that makes sense from the outside.

In order for me to stay with my family I would have had to sleep in my wheelchair, and that is just something I did not want to do.

So you could say I chose not to spend the night with my family, or you could say I chose to be comfortable. It just frustrates me that I had to choose one over the other.

It seems my choice will always be my own comfort or the comfort of those around me. It feels like I will never be in a situation where it will be possible for all of us to be comfortable. And I’m always the one expected to make the sacrifice. I chose not to make that sacrifice tonight and my reward for holding to my word is being away from my family.

It’s not that I blame my family for this just that I wish the world was more accessible to me so that these choices didn’t have to be made. Or maybe it is that I blame my family and I just don’t want to recognize it. I honestly don’t know.

Is it just me or does it not feel like Christmas tomorrow.

I’m writing this post on Christmas Eve, watching my final Christmas film of the Christmas countdown that me and my sister do. And I’m struck by how unlike Christmas it feels.

I know they say as you get older Christmas becomes less Christmas, but I don’t think I believed it until it started to happen. And I don’t think loosing my mum helped the Christmas spirit stay.

So I guess this post is not very disability or inclusivity focused. It’s just to say Merry Christmas and Happy Holidays to anyone reading this.

And try not to feel bad if you’re not feeling Christmassy about Christmas. Your only requirement is to make the best you can of the holiday, and to be kind to yourself while doing it.

Today I did

Invent a holiday! Explain how and why everyone should celebrate.

This is a holiday that can and should be celebrated as often as possible, everyday if you can manage it.

The only rule is you have to think of something that you did today and celebrate it in a way that makes you happy.

The details are up to you.

What you view as an achievement is completely up to you. Whether it’s something you’ve been working on completing for a while, or simply getting out of bed. That choice is yours.

What you do to celebrate it completely to you. Whether you go out or stay in or buy yourself that treat you’ve been wanting. The choice is yours.

This holiday is all about you.

Happy Holidays.