Sharing my life and areas of inaccessibility, as a full-time electric wheelchair user.
Besides the obvious lack of ability to walk, I forget how much my disability affects my day-to-day life, because it is just my life. Then I remember that I’m sat here alone (with the animals) with food just out of reach, and would rather fall asleep than eat, despite being hungry. Then I’m reminded just how much it affects me.
Don’t worry my sister will be back in and hour or two. I’m okay. I’m probably going to go back to sleep.
Write about your most epic baking or cooking fail.
I’m not sure if this is actually an epic fail or if it is something that’s easy to do, as I don’t have much experience with cooking. In part this is due to my lack of effort in the area, but this I believe is influenced by fatigue. The biggest influence is, I believe, the inaccessibility of the world around me.
So yes. I’m not a very good cook. And while I will allow you to and even welcome you to use my kitchen. I don’t cook for anyone that comes in my house. This is also extended to making drinks, as it just takes me to long and is to much effort.
What’s your favorite recipe?
A story of inaccessiblity and hunger and making do.
Before I begin this story I just want to say that I did have access to help, it was my own anxiety and shame that prevented me from getting it.
But many times at home as a teen I was left alone for several hours. I would get hungry and be unable to teach any of the food that we did have in the house. As such I would eat condiments as these were within my reach.
So while I can’t say it’s my favourite recipe. I do enjoy some extra seasoning once in a while after I have finished a meal.
What’s the most money you’ve ever spent on a meal? Was it worth it?
I’m honestly struggling to remember this one. I know I’ve eaten at some places where the total was around £100 I wouldn’t class that as worth it honestly. But whether something is worth it is very subjective, so I know others might say it is. I guess this question isn’t just about whether you think spending a lot of money on food is okay. But also what you think a lot of money is.
What’s your go-to comfort food?
Due to my physical disability, no food comes with ease. The closest I get is food made for me by others, which to be fair most of my food is. This does not negate the effort it takes me to eat the food, which a lot of people don’t consider as for them the no effort part is eating the food. There is no, no effort part, for me.
All this aside I would have to say my go-to comfort food is anything with potatoes in it or made from potatoes. I love chips, crisps, roast potatoes anything.
I had a picture made with mum. Not the same but its something 🎓👩🎓
Also I just cried over chocolate moose cos there was an odd number for me and my sister and mum would have had it.
She used to do that thing where she would say I don’t want a full moose but I’ll have the chocolate of your lid, so when I opened it I put extra on it so she could have more.
The big things like my graduation without her, hurt. But the little things definitely hurt me more.
I’m aware my carers can be late in the evening due to previous calls. But when they don’t let me know it delays when I eat my tea, as I explain in the above clip.
Occasionally, I then end up eating my food too quickly for me, as I did tonight. Even though it took me 30mins to eat a small meal, I feel as if I ate it to quickly and I am now dealing with the side effects of this.
Almost everything I do is reliant on other people. All I’m asking for is them to understand and respect that. And at least tell me when they’re going to be late.
I’ve heard them like to other clients while in my house. They seem not to be able to understand that honestly is better than lying and it’s honestly frustrating.
This evening they used the excuse that I wouldn’t answer the phone, while this is occasionally true, that’s not an excuse for them not ringing or contacting me in any way.
They want understanding when they don’t really want to give me any.
My life is inaccessibile to me when people lie to me, and don’t tell me what is going on. What’s a job to them is literally my life.
My Inaccessible Life 