A fatigue nap

So today, someone came to replace the wheels on my chair, and that meant I had to get out of it and in to bed. Due to the temperature being too hot to walk the dogs I knew I would not be going out, so decided that I wanted to stay in bed.

So, I took what I planned to be a small nap, before I was going to get into doing some work. And I was up 4 hours late. Well, I woke up prior to that in pain, and went back to sleep. Later on, I was woken up to help with something. But that was 4 hours later. While I was fatigued enough to apparently take such a long accidental nap, I was not fatigued enough to be unable to control when I fall asleep, as sometimes is this case. This is what I myself call CP Tired and is one way that fatigue affects me. But the way it affected me today makes me more annoyed, as I chose to go to sleep so I feel to blame for essentially sleeping the day. Despite logically knowing that I wouldn’t have chosen to take this nap if I knew that it would have lasted as long as it did.

While I know that it is clearly obvious that I needed to sleep, I hate when that happens. It ruined what I had planned to do today.

It means that I may end up being up late tonight, which means I will probably be even more tired tomorrow.

Anyway, now that I’ve written this post. I’m going to try and get back to doing the work that I should have been doing today, instead of sleeping.

A good day can disrupt plans

In my post yesterday, I wrote about discussing an event on inaccessibility that I experienced on Monday, and while I still want to write about that, I’m sure you can guess from this post’s title that this is not what this post will be about. For this, I must again apologise.

I want nothing more than to explore just how inaccessible Monday was for me, and today for that matter, as I had to return to the same area and unfortunately experienced the same problem. But I find myself after a wonderfully busy day, lacking the energy and to be frank the motivation to get into such an incident with the attention it deserves.

I will do my best to get to it eventually.

Today I had a wonderful day with my boyfriend, it’s funny to say I have a boyfriend but that’s a different story (or post) for a different day. But either way, we spent a couple of really good hours together, and while I would do it again in a heartbeat, it has left me exhausted. For once though it is that nice kind of exhaustion that comes from a good day, and not what I lovingly refer to as ‘CP Tired’, which is the exhaustion that comes from my condition.

As anyone with a chronic illness or disability who reads this will know, the good days can often cost us. Being tired is a price I am willing to pay for a good day.

Trust something well worth writing about to happen when I am too physically busy to write about it. My mum would call this, ‘sods law’
Anyway, I will do my best to get to this post tomorrow. That said I have another busy day, so I make no promises. I can only hope that you will all find this post worth the read when I finally get it out there.
I hope you all get a restful night’s sleep, and remember not to blame yourself if you find your energy levels lacking and thus preventing you from doing something you want to do.

If your condition is in any way a deciding factor for the decisions that you make, which it often is, please remember you are not responsible for this. It is your condition that has made the life you want inaccessible to you. This is not a choice you have made, do not take responsibility for something you had no control over.