Sharing my life and areas of inaccessibility, as a full-time electric wheelchair user.
Describe your most ideal day from beginning to end.
Sometimes I think I should answer this question differently to make myself seem more interesting or appealing. But honestly on as I am now, the less I can do in a day, the better. I just want to sleep.
How do significant life events or the passage of time influence your perspective on life?
It’s hard to define what a significant event is, as they’re so subjective. That in itself could be something else I write about. But the passage of time seems something universal I can write about.
The passage of time influences my perspective on life because it changes what is and isn’t important to me.
Things that are important in the moment, don’t often seem as important when the time has passed.
Now I know there’s more I can say about this, and more that I relate to myself personally, but I’m honestly lacking the motivation to write.
Something on your “to-do list” that never gets done.
Sometimes I start writing and I run out of steam, ideas, energy or all of the above.
So I guess this blog getting done, gets done. But not in the way I plan.
Many of the other writing projects I have, don’t get finished. I have the ideas just not the energy. Maybe one day huh.
What’s your favorite thing to cook?
I love food. But I don’t cook.
I love potato, seasoning and spices. But I can’t cook.
So if you’re asking what my favourite thing to cook is, that’s almost a mute question.
But that doesn’t mean I don’t get to love food.
Remember you don’t have to be able to cook to enjoy food.
What do you complain about the most?
This question sounds like complaining is a bad thing, but I don’t agree. There’s nothing wrong with complaining, I think it’s good for the soul.
Complain about the weather.
Complain about the work you have to do.
Complain about music.
Complain about your pain.
As long as it doesn’t hurt anyone, you’re allowed to complain about things that need complaining about.
It can make you feel good.
It can release negative emotions.
I complain about being disabled fairly often. That seems to upset the people who for dome reason always want me to be happy.
Why do you always have to be happy?
You’re allowed to have a bad day, when you’re not disabled. But when you’re disabled, people often say you need to be more positive. Like everything they’re good days and bad days and that’s okay, that’s how you cope. Ignoring the bad days will just make them worse in the long run, when you can’t ignore them any more.
Letting the anger out with the little things, can make the big things easier to cope with.
Feel the bad things, just don’t hurt anyone.
What would you do if you won the lottery?
I think it’s something that everyone talks about from time to time. Even when you know it’s never going to happen, it’s good to dream.
But I don’t even play the lottery, I don’t really have the money to waste, so I’m never going to win am I.
But let’s still give the question a go.
I used to say that I would by an accessible camper van. So I could live somewhere that was completely accessible to me, travel where I wanted, and see family. So that I could stay somewhere else without having to be uncomfortable. I even used to say that I would pay for carers to be on call 24/7 and follow me around in there own camper van.
And while this idea is nice, and maybe something I would do if I won a lot of money, I don’t think it’s where I would start if I won the lottery any more.
I would start with doing up the flat I live in now. Making it look nice and a little more lived in than it is.
I would then buy some more up to date tech. A good computer, a good phone things like that.
I would then stock up the house, get some better appliances than I currently have. I would make sure rent and bills are paid well in advance if possible so I wouldn’t need to worry about them.
Then a holiday, abroad. Somewhere hot maybe, or somewhere I’ve always wanted to go, Las Vagas, maybe. Or I’ve always wanted to go on a cruise, that would be fun. Or even just to say somewhere in a posh hotel.
I would also love to try a spa, get a new tattoo, get my hair done professionally. Those types of things. Maybe I could even get a jacuzzi in the garden with a hoist so I could use it.
Maybe then a car, and learn to drive.
What I find interesting about what I would do if I won the lottery, is I would just live a more accessible life. I would just like to explore the world a bit L, and live in little more comfort.
I don’t think that makes me different from many people. It’s just the money might be spent a little differently in order to active it.
It is likely to cost me a lot more to live a comfortably life, because of my disability. Life is more expensive when you’re disabled. Added to this is it is harder to earn money, and when it’s harder to earn money, you have less of it, which makes things altogether more expensive. And the inaccessibility of the world costs money to solve.
Life is just altogether more expensive when you’re disabled. People including the government somewhat recognise this, but no one who doesn’t live this life, truly understands the cost of disability.
What books do you want to read?
I love reading. But I don’t often read a book.
I’d love to read the colour purple.
I’d love to read some fanfictions that haven’t been finished yet.
List five things you do for fun.
I hope you’re able to write this list.
Remember it doesn’t matter what you for fun, just that you have something that you do for fun. Whatever that is, I’ve hope you managed to do that today.
Can you share a positive example of where you’ve felt loved?
Animals give a love like no other. One we don’t deserve.
They see me in a way no one else sees me.
We truly don’t deserve animals.
What is your favorite animal?
Both of my girls, make this an easy question. But then again, I also have a cat. You’ll find us all pictured below.
Either way they’re all my babies.
My Inaccessible Life 