I can’t get changed.

So I got very wet from the rain walking the dogs this morning, and as I am unable to change I’ve spent the day very damp. Now that I’m on my way home, I’m starting to dry off a little.

In case this wasn’t clear, once I’m dressed in the morning I generally cannot get changed until the evening. There have been occasions where I have been able to get changed throughout the day, but as I have gotten older and changing has become more difficult these instances have become few and far between.

This is somewhat of a personal choice I suppose. I could have another call in the middle of the day, but this would limit what I would be able to do with my day, and I don’t want to do that. Either way I wouldn’t just be able to call carers back when I needed it, so hanging around for them in the day just doesn’t make sense to me.

So my freedom comes at the price of my comfort, and on most days like today, once I’m wet I stay wet. But hey, at least it isn’t pee. That my friends is what we call an incontinence joke.

But now I’m cold, like to the bone cold if you know that feeling. I’m very glad my day is nearly over.

All this is to say, as I loose the energy needed to write this post. If you see someone with spilt food on there clothes, which yes I also did today. Or wet clothes. Or just something that can’t easily be fixed within five seconds, just stay quiet about it. They may be aware and may not be able to fix the problem themselves. You hilighting it only brings more shame. Additionally wait another 10 if its raining a lot when its time to walk the dogs.

Cacoon

As I write this, I am underneath two blankets, one is heated the other is not, the nonheated one is over my head.

Image Description: A closeup selfie, cut off at the nose. I am looking slightly off to the left of the camera, a white blanket covering the top right of the shot.

The heated blanket under the quilt helps to warm me faster. It gets pretty hot under here. But the heat helps enormously with pain, after being out in the cold.

I have not long gotten back after an over night trip, which has required me both to sleep in my wheelchair and to not get changed for more than 24 hours. Rail replacement buses and the joys of travelling on a Sunday, were also part of the, adventure.

I plan to write more about this in a future post, because it’s been an experience, as it usually is. But right now, I need to try to chill for an hour or so until the carers come and I can get into bed and properly relax. I just don’t have the energy, unsurprisingly, to go into detail about all this right now.

It’s cold.

The temperature has been weird lately, welcome to global warming I suppose.

It’s the cold that really gets me personally causes me a lot more pain. And honestly right now I just don’t want to go out.

I’m sat under three blankets, because that’s all I can reach on my own. This includes my attic blanket and I am still cold. The thought of going out today, just makes me angry.

I don’t have to go out, but I’m supposed to. And I honestly if I want to anymore, it really just doesn’t feel like a free choice. The thought of getting out from under these blankets honestly just seems like a bad idea.

I guess you could say that the temperature has made the world inaccessible to me for the time being. Or at least it’s made it feel that way.

I’m sorry. It’s been a long day.

If you read my previous post you’ll know that I had plans for what today’s post was going to be. But I’m here to tell you those plans have now been forgotten.

I’m still up. I’m still out. My brother had a concert to go to, and the tickets were booked before he had a mobility aid that he now uses, and so the tickets aren’t accessible. He can manage without it with help, so I was left watching it tonight. Which is obviously fine. It’s just a very long day.

It meant that I have had to cancel my care in order to be out, and I have now been up for over 12 hours. Additionally I got wet in the rain this morning, and there’s no real way for me to get changed if I get wet in the day. That means I’ve been stuck slightly wet for most of the day, which isn’t great.

So I said it’s just been a long day.