When you can’t find the things that work.

Sometimes when you’re disabled, living your life independently in an inaccessible world can be very dependent on specific pieces of technology.

Technology doesn’t know how valuable it is, and technology being technology it will eventually break. You will need a replacement eventually, that’s just life.

But just because you need a piece of technology doesn’t mean that you’ll be able to find the replacement you need for it. And what do you do when you can’t find the replacement that you need? Like anything, you adapt.

Adapting is something you have to do a lot in an inaccessible world, but that doesn’t make it easy. It can be very upsetting and difficult to do, especially when adapting involves changing a way you’ve had that works.

I don’t like to do it. But does anyone like change?

Needs must, I suppose. And so I’m trying to continue and adapt and change. To face the challenges life throws at me. But in all honesty it doesn’t get easier.

My care changed again.

So I got moved to a different run with my carers meaning the main carers I have will change. On the positive side the one that it’s changing to are actually able to come early in the morning. On the down side I had a really good relationship with the carers that I’m loosing.

One of the new carers is also someone I know outside of care, which was bound to happen, but is a first for me.

It can be a little disconcerting when my care changes without me knowing about it. Consistency isn’t something you get with care companies. Even when you do it can change at the drop of a hat. And as always, you dont get a say in it.

Choice is often conditional when disabled, if at all you have it.

But hopefully, with the better timings that these carers can do, it’ll all work out in the end. I am hopeful that by getting up earlier doing what I want with my life, will become more accessible to me.

Small victories.

The other day I repeated the treacherous journey that I made a week ago, which are discussed in in several tiktoks and on the earlier posts in this blog. I was fine thankfully. But I did run into a repeat problem, something that was there last week and was still in my way yesterday morning.

A white van with orange images and white and black text blocking a pavement on a corner next to a pole.

I ran into this van.

The same van that had meant that I had to go into the middle of the road on a corner in the dark last week.

After posting this again to my Facebook group it was suggested that I contact the email address on the van and explain my access problems because of this van.

I did this and received a reply shortly after. To my surprise on the return home this van was no longer there and therefore I was able to take this corner on the pavement. Which is a much safer option I think you will agree.

I did not expect such a response or action when I raised concerns of this with with the Facebook group and then the company. I was very pleasantly surprised.

It felt nice to know that I was actually able to make a difference to my own accessibility and no doubt the accessibility of others.

Perhaps this blog, and my social media posts will become more then just raising awareness and a tool for catharsis. Maybe they, or I, can actually lead to some real change in the world.

Somewhere it seems some are listening to me, and you know what that makes it worth the hate.