Tag: Carers

My care changed again.

On By Katy DalyIn BlogLeave a comment

So I got moved to a different run with my carers meaning the main carers I have will change. On the positive side the one that it’s changing to are actually able to come early in the morning. On the down side I had a really good relationship with the carers that I’m loosing.

One of the new carers is also someone I know outside of care, which was bound to happen, but is a first for me.

It can be a little disconcerting when my care changes without me knowing about it. Consistency isn’t something you get with care companies. Even when you do it can change at the drop of a hat. And as always, you dont get a say in it.

Choice is often conditional when disabled, if at all you have it.

But hopefully, with the better timings that these carers can do, it’ll all work out in the end. I am hopeful that by getting up earlier doing what I want with my life, will become more accessible to me.

They were late.

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The carers were late for my call this morning even though I told them I had an appointment this morning. Luckily as I was able to rush, I was not late for the appointment.

But I’ve now put in my first complaint with this company. I understand they’re busy, and 7am is a hard call, but they shouldn’t have agreed to take on my call if they couldn’t do the time.

The time is important, for me and for my independence. And they’re making living my life feel impossible by simply b

My carers are lying to me, again.

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I swear there’s no other job that you can lie so much and it somehow be expected. It makes no sense.

I really dont understand why my carers can’t just tell me the truth.

All they would have to do is be honest with me about doing the job they agreed to. And yet they don’t, they’re late and they about it. And I feel like I’m the horrible person for being so upset about it, for simply expecting them to allow me to live my life.

I’m trying to think that they’ll be one day that my carers won’t limit what I’m trying to do. But sometimes it feels like living any sort of independent, accessible life is impossible.

I’m just tired.

Tired of trying.

Tired of my trying not working.

Tired of it being so hard to try.

I don’t feel as disabled as my carers often remind me that I am. I don’t think they’re used to that. Someone that wants and believes they can live the life they want, or at least as much of it as possible, that is as physically disabled as me.

I don’t know when my carers are not going to be a problem. I need them. But I also want so badly to be free of them.

For now though all I really want is for tell me the truth.

Yes, unfortunately.

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Was today typical?

The carers were late, and this had now become my norm.

This honestly ruins my day. I’m the type of person that has to be up and out of the day to make anything out of the day. And the carers being late are ruining that.

They’re blaming other clients. Yet they can come on time when they know I have an appointment. So they can come on time, they just apparently don’t want to.

I really don’t understand why it’s so hard for people to do the job they agree to do. But I do know exactly why it surprises them that I need to be somewhere everyday, that I have a life. The answer to that is ableism.

I’m just trying to live my life and they are making it so difficult and so inaccessible.

Having to deal with my life and make something of it, is hard enough without there lies and inability to do there job on top.

I may need to change companies again. Annoy my social worker, by trying to live my life. But I honestly font want to do any of that. Having to do all of that is making me feel even more disabled. I hate it.

I have to focus on myself, right?

On By Katy DalyIn Blog, My Disability TruthLeave a comment

So today I had a visit from someone to find me some kind of different seating to spend some of my time in, as it isn’t good to spend all your time in the same chair. And she suggested w few other adaptations which could benefit my sister in the home.

I feel a little guilty, because while she was focusing on my sister in some areas, I was almost completely focused on myself, and how what is being suggested will also be beneficial to me.

The way I see it it’s more important that this place works for me than it does my sister. As I’m unlikely to ever move, however this option is open to my sister should she choose to take it.

So I am being selfish, I think, a little. But I have to be. Everywhere else inaccessible to me, I have a right to focus on myself first, on where I live being accessible to me. I shouldn’t feel guilty about that, and yet I do.

That said, what’s been proposed will help, both of us. So that’s good. And my sister seems to understand why I’m being selfish in my thought process here which is even better.

I also struggled with the extent to which the conversation discussed what I need from her, but that’s something else that I don’t really want to think about right now.

I’m trying to deal with all this while also organising the rest of my life, the organisation of which is not up to me. As aell as dealing with the few elements of my life that are within my control. So let’s just say there’s a lot going on right now.

It’s not a lie in if I don’t ask for it.

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My carers were two hours late this morning. This is an improvement on the previous day when they were three hours late. However, when they arrived they said that they let me lie in.

I’m just going to say this again. It’s not a lie in if I don’t ask for it. You’re not doing me a favour for being late.

Luckily today I do not have plans but next Saturday I do. It’s not up to you to decide what I want or what’s best for me.

I don’t understand why it’s so hard for people to do their jobs. And when they don’t they make the life I’ve built around me inaccessible. Most people aren’t going to care that I couldn’t be there because the cares decided to let me lie in. You’re not doing me a favour.

Nice carers aren’t always easy.

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What you’ll see as me becoming rude is actually me finding the confidence to stand up for myself. It took months of me just putting up with things to get to that point.

When I get a new company, like I have recently its like starting over again with the confidence I had.

It’s hard I don’t want to be rude but i don’t want to be in my bed at 11am.

I feel like control over my life is suddenly inaccessible to me yet again. I know what I need to do to fix it, it’s just a lot harder to actually do it.

New carers.

On By Katy DalyIn My Disability TruthLeave a comment

I’m waiting for new carers. This morning after trying to confirm my care for this week, I learnt that I’ve been completely switched over to a new care company starting this evening. Don’t get me started on the fact that they can’t do the times I’ve asked for. I’m so angry about that. But right now I’m literally waiting for people I’ve never met before that don’t know me at all. To come and get me ready for bed, to see me naked and I’m honestly really nervous. I hate this.

The carers injured me.

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When rolling me the morning the carers were not careful enough to ensure both my legs stayed on the bed. A combination of this and the sheets fabric meant that both my legs fell off the bed. They are now hurting me and will probably be sore for a day or two.

I am lucky that most days after my care my pain will almost completely go or at the very least go to my level of normal, if I am positioned correctly in my wheelchair. But after this incident I don’t think that today will be one of those days.

I’m well aware that accidents happen but sometimes they happen because you don’t take enough care. In situations like what happened to me, when they happen you are not the one left suffering, someone else is. So please take extra care when doing something when someone is at risk of becoming hurt if you do it wrong.

I have to get up at 7am

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What time do you go to bed and wake up currently?

Due to my carers, I have to get up at 7 am and go to bed at 8 pm. This is to ensure I am up early enough on important days. It’s difficult to have them come early when necessary if they don’t come early all the time.

I usually do get to go back to sleep in my chair afterwards though, so I don’t consider 7 am as the time that I get up if I go back to sleep.

As for the 8pm call, again I rarely go to sleep then, before 12am is considered an early night for me. But 8pm was the latest call time I was able to get. It used to be 7pm not that long ago. I know it sounds cool getting to go to bed early, but I promise you it’s completely different when you don’t get a day in it, when you are stuck in bed once you’re in it and it’s the same every day. It’s annoying to say the least.