Who are your favorite people to be around?
Yes I know what the question says and that’s still my answer.
They don’t judge me. They don’t care I’m disabled. I’m just mum. And I’ll forever love them for that.
Category: Writing Prompts
I don’t like questions like this.
What were your parents doing at your age?
My parents were doing a lot more than me at my age. They were doing a lot more than I probably every will, depending on what you class a lot as.
By saying they were doing a lot, it makes it sound like I’ve been doing nothin, and honestly, that’s not true. But it is fair to say that my parents have done things by my age that I will never do.
Times have changed and situations are different. Comparing generations and people is unfair, as it doesn’t recognise this.
I may not have achieved as much as my parents, but I believe I have worked harder for what I’ve achieved than they ever have.
I’m supposed to say my wheelchair, right?
The most important invention in your lifetime is…
So I’m going to answer this question in terms of what invention I feel has had the most important impact on me personally. Not necessarily the most important global or social invention of my time. Basically I’m not doing any research, I’m just answering the question based on my life.
If you looked at me now, you’d think this was the most logically answer. And while I am grateful for the invention of the wheelchair, and in my case particularly the electric wheelchair, there are in fact other more important inventions to me.
I don’t think I’d be answering this question properly if I didn’t consider the inventions that undoubtably saved my life when I was born. Like many with my condition I was born extremely prematurely and should’ve died. So a small nod to the inventions that are the reason I’m alive.
Then it’s important to remember the ones you’re more likely to see me in, my electric wheelchair. There’s my electric bed and air mattress that I need to sleep, as well as my electric blanket which has to be the best pain killer for me personally. My comfy chair which just gives me somewhere else to sit and my shower chair, which I hope by the title is self-explanatory. Then you’ve got to remember the hoist, that gets me from a, to b, to c and sometimes d.
But the ones that I feel are the most important thing to me are those like the mobile phone, the internet, the computer. Now I know this sounds very millennial of me, if I’m getting the terminology correct. And someone’s somewhere is going to judge me for my reliance on the internet. But just remember where you’re reading this blog.
The internet, social media and the technology that exists to use them on. Provides me access and inclusion to the world around me in a way my wheelchair cannot do in such an inaccessible world. Steps do not exist on the internet.
I know social media gets a bad reputation and I understand why. But I always say it’s the way people use technology, not the technology that it is bad. While this doesn’t apply to things like guns which don’t have a good use. It applies to things like knives which clearly do, and in the case of this post, social media.
Social media lets me be the me I wish I could be in the real world. It lets me meet new people near and far, and learn all about them. It lets me keep in touch with people, that would be even more difficult to do without social media due to my lack of mobility. The internet truly is a wonder. And phones can do so much, provide so much access beyond what I use them for.
Inventions truly are a wonder. They can often be used by people in ways the person who invented them likely never imaged. They are never to be underestimated.
My disability.
Do you need a break? From what?
Sometimes I think the hardest part of my disability is not that I’m disabled, but that I’m disabled every day.
Sometimes I just want a break from who I am.
As little as possible.
Describe your most ideal day from beginning to end.
Sometimes I think I should answer this question differently to make myself seem more interesting or appealing. But honestly on as I am now, the less I can do in a day, the better. I just want to sleep.
The passage of time
How do significant life events or the passage of time influence your perspective on life?
It’s hard to define what a significant event is, as they’re so subjective. That in itself could be something else I write about. But the passage of time seems something universal I can write about.
The passage of time influences my perspective on life because it changes what is and isn’t important to me.
Things that are important in the moment, don’t often seem as important when the time has passed.
Now I know there’s more I can say about this, and more that I relate to myself personally, but I’m honestly lacking the motivation to write.
Many of these posts to be honest.
Something on your “to-do list” that never gets done.
Sometimes I start writing and I run out of steam, ideas, energy or all of the above.
So I guess this blog getting done, gets done. But not in the way I plan.
Many of the other writing projects I have, don’t get finished. I have the ideas just not the energy. Maybe one day huh.
I don’t cook much.
What’s your favorite thing to cook?
I love food. But I don’t cook.
I love potato, seasoning and spices. But I can’t cook.
So if you’re asking what my favourite thing to cook is, that’s almost a mute question.
But that doesn’t mean I don’t get to love food.
Remember you don’t have to be able to cook to enjoy food.
This seems judgmental.
What do you complain about the most?
This question sounds like complaining is a bad thing, but I don’t agree. There’s nothing wrong with complaining, I think it’s good for the soul.
Complain about the weather.
Complain about the work you have to do.
Complain about music.
Complain about your pain.
As long as it doesn’t hurt anyone, you’re allowed to complain about things that need complaining about.
It can make you feel good.
It can release negative emotions.
I complain about being disabled fairly often. That seems to upset the people who for dome reason always want me to be happy.
Why do you always have to be happy?
You’re allowed to have a bad day, when you’re not disabled. But when you’re disabled, people often say you need to be more positive. Like everything they’re good days and bad days and that’s okay, that’s how you cope. Ignoring the bad days will just make them worse in the long run, when you can’t ignore them any more.
Letting the anger out with the little things, can make the big things easier to cope with.
Feel the bad things, just don’t hurt anyone.
I’ve talked a lot about this recently.
What would you do if you won the lottery?
I think it’s something that everyone talks about from time to time. Even when you know it’s never going to happen, it’s good to dream.
But I don’t even play the lottery, I don’t really have the money to waste, so I’m never going to win am I.
But let’s still give the question a go.
I used to say that I would by an accessible camper van. So I could live somewhere that was completely accessible to me, travel where I wanted, and see family. So that I could stay somewhere else without having to be uncomfortable. I even used to say that I would pay for carers to be on call 24/7 and follow me around in there own camper van.
And while this idea is nice, and maybe something I would do if I won a lot of money, I don’t think it’s where I would start if I won the lottery any more.
I would start with doing up the flat I live in now. Making it look nice and a little more lived in than it is.
I would then buy some more up to date tech. A good computer, a good phone things like that.
I would then stock up the house, get some better appliances than I currently have. I would make sure rent and bills are paid well in advance if possible so I wouldn’t need to worry about them.
Then a holiday, abroad. Somewhere hot maybe, or somewhere I’ve always wanted to go, Las Vagas, maybe. Or I’ve always wanted to go on a cruise, that would be fun. Or even just to say somewhere in a posh hotel.
I would also love to try a spa, get a new tattoo, get my hair done professionally. Those types of things. Maybe I could even get a jacuzzi in the garden with a hoist so I could use it.
Maybe then a car, and learn to drive.
What I find interesting about what I would do if I won the lottery, is I would just live a more accessible life. I would just like to explore the world a bit L, and live in little more comfort.
I don’t think that makes me different from many people. It’s just the money might be spent a little differently in order to active it.
It is likely to cost me a lot more to live a comfortably life, because of my disability. Life is more expensive when you’re disabled. Added to this is it is harder to earn money, and when it’s harder to earn money, you have less of it, which makes things altogether more expensive. And the inaccessibility of the world costs money to solve.
Life is just altogether more expensive when you’re disabled. People including the government somewhat recognise this, but no one who doesn’t live this life, truly understands the cost of disability.
My Inaccessible Life 