So today, I pushed myself to do a lot, I went out of my way to be there for different people in my family. And as my wife always runs on the schedule of my carers, I had to fit doing what I could into them.

Honestly, that’s one thing. I don’t think people consider about getting carers, is how regimented your life has to become as a result. You have to do things at the same time every day regardless of what is thrown at you during that day that might change that. On this day, it was simply taking something that had been forgotten by one person to another, but I had to fit that into everything else I had to do and fit that into my care as well.

I like to do as much as I can for other people, it’s probably some internalised ableist part of me that wants to feel useful because I need so much help off others. As there isn’t much I can do for others, I want to be sure that what I do I do properly.

As I have to get public transport everywhere this can be quite difficult to do when it involves going to different places as it did today. But I do the best I can, and just hope I’m useful.