So my care is changing again.

So, my carers told me this evening that my calls will be changing again. Specifically, they said that someone else will be coming in the morning, but they did not know who. The problem isn’t really that someone different is coming, though that can lead to awkward situations, it is that I don’t know if they will be coming on time.

Often my carers take it upon themselves to decide that my plans can’t be important enough for them to need to come as early as my call is scheduled for. Essentially this comes down to their belief that I as a disabled person can’t have plans that are important enough for them to come on time. There ableism is obvious to me even if they don’t see it.

So anyway, the result of this is I may not be able to do the things I have planned to do tomorrow if my carers are late. Not that they seem to be bothered.

Honestly, call me a hypocrite or whatever you want because I don’t work myself. But I don’t know any other job besides home care where people do not take times seriously. They literally don’t think disabled people have anything to do, it’s beyond frustrating.

My care is specifically provided by a company as it would take a lot of individual carers to ensure the consistency in care that I need, and this would be incredibly difficult to find. However, the downside of this is that they can change my care whenever they want, like they seem to be doing a lot lately, and there is nothing I can do about it.

This is one of the several reasons that I don’t have a job and would find it incredibly difficult to get a job. Namely, due to the inaccessibility of the world around me, which my carers do not help with. Though they are necessary, they make the problem of inaccessibility worse. But the fact they are necessary means there is nothing I can do if they literally will not get me up on time in the morning. Yes, I can complain, but that won’t get them there on time.

Anyway, lets see what happens, and if I get to go out tomorrow.

7 thoughts on “So my care is changing again.

      1. DisabledDahling's avatar chickonwheelz

        Honestly I could tell you some horror stories!! I might start writing them as a series… Flash Back Friday: Times of Inadequate Care part one… 😂🤘🏻 Love your blog by the way. Keep your chin up chicken xxx

        Liked by 1 person

      2. DisabledDahling's avatar chickonwheelz

        Yes of course I can chicken! If you follow me you’ll get automatic updates anyway but, that’s up to you. It’s not like 2014 on Twitter when we all asked ‘follow for a follow?’ 😂❤️
        I hope you have a lovely evening!
        It’s nice to meet you, my name is Raimie and I am 25 from Wales and I’m a wheelchair user with cerebral palsy. I recently just got back into blogging and I’d really like to become a disabled advocate for the next generation of women in particular. I’m reading a brilliant book at the moment that I must recommend to you, it’s called the view from down here, life as a young disabled woman by Lucy Webster. Honestly the amount of times I’ve caught myself not belong to it and agreeing with everything she said is absolutely true. Definitely an engaging breed for this generation is disabled women! ❤️📖

        Liked by 1 person

      3. Katy Daly's avatar Katy Daly

        I’ll certainly follow you!! I feel like maybe we’ve had some pretty similar experiences. I also have Cerebral Palsy and am a full-time wheelchair user. I will certainly look into it. Thank you for the recommendation. 😊

        Liked by 1 person

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