Im sat here waiting for the carers to come. It’s my shower night. The designated night at which I’m alloted a longer call to be able to shower. I had to fight to get it back because they took it off me certain days a week. And now I have it back I have to use it to keep it.

But the truth is as I’m sat here all I can think about is the fact that I do not want to shower tonight.

Control over your own life is inaccessible when you need help for a lot of things. You have to be greatful and take what others feel they are so gratuitously giving to you whether you want it or not.