Existing is a DIY Project

Describe the most ambitious DIY project you’ve ever taken on.

As a disabled person, existing in an inaccessibile world is a DIY project.

I have to solve all the problems in my life. I have to fix all the cracks and all the leaks with very little help.

I have to find accessible ways to exist in as much of the world as I can.

My life is basically trying to stop the house falling down while ables shoot at the house with cannons.

You see people offer to help, and sometimes I need it. But the help comes conditions.

It comes with schedules and rules that I must live by in order to be worthy of there help.

So in some ways I have to engineer the best version of my life that I am able to.

And yet it or perhaps when it fails, I am somehow responsible for it.

So I try to control what I can and hope it doesn’t fall apart. And somewhere in that live my life. Always knowing the rules of the game could change at any time.

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